Empowering Autistic Adults: The Moral and Practical Necessity of Specialized Centers
Introduction
Autism
Spectrum Disorder (ASD) is a complex developmental condition that affects
social interaction, communication, and behavior, with a broad range of
severity. While considerable attention has been paid to the early diagnosis and
intervention of children with autism, the needs of autistic adults remain
largely underserved. As these individuals transition into adulthood, many are
challenged by significant barriers, such as difficulties in securing stable
employment, finding suitable housing, and forming meaningful social
connections. Unlike children, who often have access to special education
programs and therapeutic interventions, autistic adults frequently face a
sudden withdrawal of structured support once they age out of youth services,
typically around the age of 21. This shift, often referred to as the “services
cliff,” can leave families scrambling for support and individuals vulnerable to
regression or stagnation (Lord et al., 2018; Cuthbert, 2018). As
of recent estimates, approximately 5.4 million adults in the United States are
living with autism spectrum disorder (ASD), yet only about 17% of autistic
adults live independently, with the majority residing with family members or in
supported living environments due to limited access to appropriate resources
and services (Centers for Disease Control and Prevention [CDC], 2022; Shattuck
et al., 2018).
This
abrupt transition can lead to significant difficulties in securing employment,
stable housing, and meaningful social connections. These challenges often lead
to isolation, marginalization, and a lack of opportunities to achieve
independence and self-sufficiency. The establishment of a specialized center
for autistic adults is both an ethical and practical solution to address the
challenges they face in employment, housing, and social participation while
upholding their moral right to autonomy, dignity, and inclusion, and fostering
greater independence and societal benefits. By providing crucial services such
as job training, independent living support, and social integration programs,
these centers ensure that autistic adults can lead fulfilling lives while
contributing to the broader community.
Furthermore,
creating these centers will foster an environment that educates and empowers
both autistic individuals and the broader community. They will provide advocacy
training, employment networking, and skill-building workshops that allow
autistic adults to participate in society with confidence. From a societal
perspective, investing in these centers can lead to increased workforce
participation, reduced reliance on social welfare programs, and enhanced public
awareness about autism and neurodiversity. Beyond its practical benefits,
establishing such a center also raises important moral considerations. It is a
question of justice and equity: whether society has a moral responsibility to
provide specialized services to adults with autism, and how these services can
empower individuals to live with dignity and autonomy.
Many existing centers for autistic adults are often limited in scope, offering only specific services such as employment assistance or housing support, without addressing the full range of needs individuals may have across the autism spectrum (Anderson et al., 2014). In response to these gaps, this author proposes the creation of a comprehensive, multidisciplinary center designed to serve autistic adults of all support levels, offering an abundance of resources including independent living training, social inclusion programs, mental health services, vocational development, and sensory-friendly spaces to ensure that everyone’s unique challenges and strengths are fully supported in one cohesive environment. This paper will examine both the ethical and practical benefits of establishing dedicated centers for autistic adults, highlighting the moral imperative to ensure that these individuals are not overlooked but are provided with the resources and opportunities they deserve.
Challenges
Faced by Autistic Adults
Employment
As
children with autism transition into adulthood, they encounter a range of
challenges that significantly affect their quality of life. One of the most
critical issues is the lack of employment opportunities. Many autistic adults
possess skills and talents but struggle to find stable, fulfilling work due to
misconceptions about their abilities, societal stigma, and the absence of
necessary workplace accommodations. Research highlights that autistic
individuals often face difficulties with job interviews, social expectations in
the workplace, and anxiety related to work environments (Hendricks, 2010).
Autistic
individuals often experience anxiety in social interactions, which can make
traditional work environments particularly stressful. As a result, they are
often limited to low-wage or part-time jobs, or, in some cases, face long-term
unemployment. Autistic adults often experience long-term dependency on family
members or social services due to persistent unemployment, which is linked to
barriers such as lack of employer understanding and inadequate workplace
accommodations (Hendricks, 2010) This created dependency, and financial
instability, contributes to limitations in their ability to lead independent
lives.
Housing
A
2023 report from the Charlottesville Region Autism Action Group and UVA
Supporting Transformative Autism Research Initiative emphasizes that inadequate
housing options force many autistic adults to live in institutionalized
settings or with family members indefinitely.
Moreover, for many
autistic adults, the path to independence is blocked not by their abilities,
but by a lack of meaningful opportunities to gain experience the everyday
skills others often take for granted. After age 21, when many supportive
school-based services end, families are left to navigate a confusing and often
inadequate adult services system. Skills like managing money, finding and
keeping a job, or even understanding how to live on one’s own are rarely taught
in accessible ways. Hendricks (2010) points out that without this foundation,
employment becomes even more difficult, leaving many autistic adults stuck in
cycles of dependence. This, in turn, limits the ability to afford housing that
is available.
As
Cuthbert (2018) shares from personal experience, these gaps in support can also
leave families overwhelmed and individuals feeling isolated or helpless.
Without programs that are designed to teach practical life skills with patience
and dignity, autistic adults are too often denied the chance to grow, make
choices, and live the fuller, more independent lives they deserve. The result
is many autistic adults face limited access to resources that would allow them
to develop the skills necessary for independent living. This lack of services
perpetuates a cycle of dependence, leaving many individuals unable to reach
their full potential.
This
lack of independent living opportunities, and lack of necessary life skills,
contributes to a diminished sense of autonomy and personal growth
(Charlottesville Region Autism Action Group & UVA Supporting Transformative
Autism Research Initiative, 2023). Finding a safe, supportive place to live is
something many people take for granted, however for autistic adults, it’s often
out of reach. Independent living options are limited, and the few that do exist
may not offer the kind of support needed for someone to truly feel at home or
build a life of their own.
As
reported by the Charlottesville Region Autism Action Group and UVA’s Supporting
Transformative Autism Research Initiative (2023), more than 80% of autistic
adults continue to live with family members because there simply aren’t enough
affordable and suitable housing options available. When housing does exist, it
often lacks the tools for individuals to grow, such as staff who are trained to
understand individual sensory needs or how to create environments that promote
daily living skills. As a result, many autistic adults are left feeling
isolated and stuck, not because they’re incapable of independence, but because
the systems meant to support them fall short. Everyone deserves the chance to
live with dignity, choice, and connection, and for autistic adults, accessible supportive
housing is a key part of making that possible.
Social Participation and
Inclusion
Social
participation remains another significant barrier for autistic adults, as
stigma and inadequate community supports often lead to isolation and exclusion
(Lowinger & Pearlman-Avnion, 2019). Social communication challenges make it
difficult for many individuals to form and maintain friendships, and they may
find it hard to integrate into community activities. This lack of social
inclusion often leads to loneliness, depression, and a feeling of being
disconnected from the world around them. Research by Lord et al. (2018),
highlights that autistic adults commonly experience higher rates of anxiety and
depression, much of which is linked to chronic social isolation and the absence
of meaningful community engagement.
Social
stigma and difficulties in social communication prevent many autistic adults
from fully participating in their communities. Studies suggest that societal
expectations, particularly for men, can exacerbate these struggles (Kimmel et
al., 2015). Without structured support, autistic adults may experience
loneliness and depression due to a lack of meaningful social connections
(Lowinger & Pearlman-Avnion, 2019).
One
significant barrier is the absence of inclusive community programs. Many social
activities are not designed with neurodivergent individuals in mind, making
participation difficult. As a result, autistic adults often face exclusion due
to sensory sensitivities, communication barriers, and a lack of accommodations
in mainstream social environments (Lowinger & Pearlman-Avnion, 2019).Community
programs that focus on inclusive recreational activities, peer mentorship, and
structured social skills training can bridge this gap, fostering a sense of
belonging and connection (Cuthbert, 2018). Encouraging broader public awareness
about autism and neurodiversity can also help reduce stigma and create a more
accepting society.
A
critical issue is the lack of specialized services available to autistic
adults. Without structured support, these individuals may struggle with
essential daily tasks such as managing finances, participating in social
events, or maintaining personal relationships.
Children with autism
often benefit from educational programs, therapy, and other support services,
however there is a stark gap when it comes to services for adults. While
significant resources and research have focused on early intervention for
children with autism, support for autistic adults remains severely lacking
(Lord, Elsabbagh, Baird, & Veenstra-Vanderweele, 2018).
Moral Implications
The
moral dimension of these challenges cannot be overlooked. As Hens (2021)
argues, society has an ethical obligation to support the autonomy and dignity
of all individuals, regardless of neurodevelopmental differences. This
obligation is grounded in the recognition that every person deserves the
opportunity to live with dignity, independence, and respect (Benjamin &
Sohnen-Moe, 2021). The absence of dedicated support systems for autistic adults
raises ethical questions about fairness and responsibility. Is it morally
acceptable for society to neglect the needs of autistic adults after they reach
adulthood?
Creating
a specialized center for autistic adults, this author’s goal, would fulfill the
moral responsibilities of empowering them to lead self-sufficient lives, ensure
social inclusion, and provide the resources necessary for their success. It is
a matter of justice to ensure that autistic adults are not excluded from the
full benefits of society and that their rights to autonomy and participation
are fully respected (Hens, 2021; Brodhead et al., 2018).
Proposed
Solution: Center for Autistic Adults
Ethical Consideration for
Opening a Center
Autistic
adults face a range of challenges that hinder their ability to achieve
independence and social inclusion, from limited housing options to a lack of
community engagement opportunities. A proposed solution is the creation of a
specialized center designed to address these needs by providing supportive
housing, life skills training, and social participation programs. This center
would offer tailored resources aimed at fostering independence, while also
ensuring that individuals have access to safe, inclusive living environments.
According to Hendricks (2010), supportive housing and job training are crucial
to helping autistic adults live independently and reduce dependency on family
members. Additionally, programs aimed at promoting social inclusion can
counteract the isolation and loneliness often experienced by this population
(Lowinger & Pearlman-Avnion, 2019).
Beyond
the practical aspects of care, the creation of such a center raises important
ethical considerations. As Hens (2021) emphasizes, society has a moral
responsibility to ensure that autistic adults are treated with dignity and
given the same opportunities for autonomy and participation as their
neurotypical peers. Establishing a center dedicated to meeting these needs is
not only a practical solution, but a moral imperative, ensuring that autistic
adults can live self-sufficient, fulfilling lives. A dedicated center would
offer personalized support in areas such as independent living, social
connection, and employment readiness, all in one space.
Unlike
scattered programs that may require navigating multiple systems and locations,
a centralized environment provides continuity of care, builds trusting
relationships, and reduces logistical stress for both participants and their
families. Most importantly, it allows individuals across the autism spectrum to
receive tailored services that honor their pace, preferences, and personal
goals. In doing so, the center becomes more than just a service provider, it
becomes a community where autonomy is nurtured, and dignity is the standard.
However,
opening a center for autistic adults is not just about providing services, it
is also about creating a safe, empowering space that honors each person's
unique identity. Central to this mission is the ethical commitment to autonomy,
dignity, and respect. These principles ensure that autistic adults are not
passive recipients of care but active participants in shaping their lives.
Respecting autonomy means allowing individuals to make choices about how they
live, work, and interact. Dignity involves recognizing their inherent worth,
regardless of communication styles or cognitive differences. Hens (2021)
emphasizes that true ethical support must move beyond token gestures and engage
deeply with everyone’s right to be heard and respected. This perspective
reminds us that the core of ethical care is listening, to voices that are too
often overlooked, and responding with empathy, flexibility, and fairness.
Translating
ethical ideals into daily practice can be complex but is essential for any
center that serves autistic adults. Practical ethics ask us to consider how we
design programs, train staff, and interact with the individuals in our care.
Brodhead, Cox, and Quigley (2018) highlight the importance of creating systems
that are not only effective but also humane. This includes ensuring informed
consent, protecting individual rights, and avoiding any form of coercion or
control that might undermine personal autonomy.
Ethical
service implementation also means adopting practices to meet evolving needs, what
works for one person may not work for another, and flexibility is key. Regular
training in ethical decision-making, trauma-informed care, and communication
strategies ensures that staff are equipped to meet these challenges with
sensitivity and professionalism. According to Brodhead, Cox, and Quigley
(2018), ongoing training and adaptive care models are essential in ensuring
that services remain respectful, responsive, and effective in addressing the
diverse needs of autistic adults. Ethics, in this context, is not a one-time
consideration but a continuous, dynamic commitment to doing right by those we
serve.
Advantages of Establishing
a Center for Autistic Adults
One
of the most transformative benefits of a dedicated center is its ability to
nurture independence among autistic adults. Many individuals with autism face
barriers in learning the skills needed for everyday cooking, budgeting, time
management, and more. Through personalized programs, life coaching, and
firsthand practice, a center can offer the tools and confidence needed to live
more independently. Centers like Horizon House in Philadelphia, which
offers programs designed to teach life skills through individualized coaching
and firsthand practice, have seen remarkable outcomes in helping autistic
adults build confidence and independence (Horizon House, 2023).
Another
example is the Autism Works program, which provides job training, social
skills development, and life coaching specifically tailored to autistic adults,
helping them prepare for meaningful employment and social integration (Autism
Works, 2022). These centers empower individuals to learn at their own pace,
offering a structured yet flexible environment that adapts to their unique
needs. When individuals are supported in learning at their own pace and
according to their own needs, the outcomes can be profound. Research has shown
that tailored, individualized support can significantly enhance the development
of life skills, self-sufficiency, and overall well-being for autistic adults
(Brodhead, Cox, & Quigley, 2018).
Social
connection is a basic human need, yet many autistic adults experience isolation
due to stigma, misunderstanding, or inaccessible social environments. A center
provides more than just services; it offers a community. Here, autistic adults
can build friendships, participate in group activities, and share their
experiences with others who understand. Social inclusion goes beyond
surface-level interactions; it means creating spaces where individuals feel
truly welcomed, valued, and empowered to engage. Structured social programs,
mentorship opportunities, and inclusive community events can foster a sense of
belonging that extends far beyond the center’s walls.
Programs
like The Daniel Jordan Fiddle Foundation, which provides
crucial resources and advocacy for autistic adults, focus on independence
and community engagement (The Daniel Jordan Fiddle Foundation, n.d.). Also, Best
Buddies has been instrumental in fostering social inclusion for individuals
with intellectual and developmental disabilities by offering mentorship and job
training opportunities (Best Buddies International, n.d.). Both have
successfully connected autistic individuals with mentors and peers, allowing
for meaningful social interactions and community integration. Research shows
that structured social engagement, especially when coupled with mentorship, can
significantly improve social skills and reduce isolation for autistic adults
(Lord et al., 2018). Moreover, centers such as these can aid in fostering
lasting and genuine relationships by creating a community with those enrolled.
Employment
is a major hurdle for many autistic adults. Despite having the skills and
willingness to work, they often face discrimination, lack of accommodation, and
misunderstanding in the workplace. A center can directly address these
challenges by offering individualized job training, partnering with employers,
and providing on-the-job coaching. Programs can include resume workshops,
interview preparation, and assistance in navigating workplace dynamics.
According to Focus on Autism and Other Developmental Disabilities, such
targeted support significantly improves employment outcomes and job
satisfaction. When employment is approached as a collaborative, supported
effort, autistic adults are more likely to find, and keep, meaningful work that
aligns with their strengths and interests.
Bringing
all essential services for autistic adults, such as life skills coaching, job
training, and social programs, into one dedicated center can make a world of
difference. For many autistic individuals, navigating different programs
scattered throughout the community can be overwhelming, especially when each
place has different staff, expectations, and routines. According to Weiss and
Lunsky (2010), changes in environment and inconsistencies in service delivery
can increase anxiety and decrease participation among autistic adults,
highlighting the need for more streamlined and predictable support systems. A
single, familiar space where they feel understood and supported removes those
barriers. It allows for personalized care from a consistent team that works
together to meet each person's unique needs.
This
type of holistic support fosters not just independence but also confidence,
comfort, and connection. As Hens (2021) notes, coordinated and continuous care
is crucial in honoring the dignity and autonomy of neurodivergent individuals.
When everything from job coaching to social events is offered in a trusted
environment, it becomes more than just a service hub; it also becomes a
community, a place to belong. Moreover, consistency in setting and staff
reduces anxiety and helps autistic adults build lasting relationships and
routines. According to Weiss and Lunsky (2010), consistent caregiver
relationships and predictable routines are associated with better mental health
outcomes and improved quality of life among adults with autism. Over time, this
stability nurtures not only skill development but also a deeper sense of
identity and self-worth.
Practical Considerations
for Running a Center
Behind
every successful center is a team of compassionate, well-trained professionals.
Staffing decisions must prioritize not only formal qualifications, such as
degrees or certifications, but also qualities like patience, empathy, and
real-world experience. Moreover, research indicates that mentors trained to
understand the strengths and support needs associated with autism can
significantly aid autistic employees in navigating workplace challenges,
thereby enhancing job satisfaction and retention (Ezerins et al., 2024). Training
should go beyond the basics to include areas like communication styles, sensory
needs, behavior support, and crisis intervention.
As
Brodhead, Cox, and Quigley (2018) emphasize, ethical and effective service
delivery depends on the continuous education of staff in practical ethics,
individualized care strategies, and respect for autonomy. It's also essential
to involve autistic voices in training programs, ensuring that staff learn
directly from those with lived experience. Ongoing professional development and
reflective practice can help staff grow in empathy and effectiveness, fostering
a culture where learning and respect go hand in hand.
A
well-intentioned center can only thrive with a solid financial foundation. This
means careful planning around budgets, exploring diverse funding sources, and
building partnerships with community organizations, nonprofits, and public
agencies. Sustainability also involves transparency and accountability, ensuring
that funds are used effectively and that services remain affordable and
accessible. Creative strategies such as grant writing, social enterprise
models, and donor campaigns can provide long-term support without compromising
mission or quality. Ultimately, financial stability is not just a logistical
concern; it’s a commitment to continuity of care for those who depend on these
services, and those whose lives they touch (Focus on Autism and Other
Developmental Disabilities, n.d.).
Conclusion
Creating
a center for autistic adults is an ethically grounded and practically necessary
step toward a more inclusive society. Ethically, it affirms the rights, voices,
and dignity of autistic individuals. Practically, it addresses pressing gaps in
adult services, most especially in areas like housing, employment, and
community life. The creation of a center, such as described in this document,
has the potential to empower individuals to lead fulfilling, self-directed
lives while also supporting families and caregivers in meaningful ways. These
efforts do more than provide support; they reflect our collective moral
responsibility to care for and uplift one another, especially those who are
often marginalized or misunderstood.
The
benefits of this type of center extend far beyond the individuals they serve.
By modeling inclusive practices, educating the public, and demonstrating the
value of diversity, they will be able to help shape a more compassionate and equitable
society. They can encourage us to rethink outdated assumptions about ability,
productivity, and community. Morally, establishing such centers is a call to
justice, a declaration that all individuals, regardless of neurotype, deserve
to live with dignity, autonomy, and opportunity. It challenges us to act on our
shared ethical obligations, recognizing that a truly just society ensures the well-being of its most vulnerable members. When we invest in the
success of autistic adults, we reaffirm the moral values of empathy, respect,
and shared humanity. In doing so, we create not only stronger communities but
also a more ethical and enlightened world for everyone.
References
Benjamin, B. E.,
& Sohnen-Moe, C. (2021). The ethics of touch: The hands-on
practitioner’s guide to creating a professional, safe, and enduring practice
(3rd ed.). Sohnen Moe Associates, Inc.
Best Buddies
International. (n.d.). About Best Buddies. Best Buddies International.
Retrieved May 1, 2025, from https://www.bestbuddies.org
Brodhead, M. T.,
Cox, D. J., & Quigley, S. P. (2018). Practical ethics for effective
treatment of autism spectrum disorder. Elsevier Ltd.: Academic Press.
Burgess, S., &
Cimera, R. E. (2014). Employment outcomes of transition-aged adults with autism
spectrum disorders: A state of the states report. Journal of Autism and
Developmental Disorders, 44(1), 138-145. https://doi.org/10.1007/s10803-013-1854-4
Centers for Disease
Control and Prevention (CDC). (2022). Data and Statistics on Autism Spectrum
Disorder. Retrieved from https://www.cdc.gov
Charlottesville
Region Autism Action Group, & UVA Supporting Transformative Autism Research
Initiative. (2023). The housing needs of people with autism. Retrieved
from
https://www.commonwealthautism.org/wp-content/uploads/2024/02/The-Housing-Needs-of-People-With-Autism-2023.pdf
Cuthbert, U. (2018).
Adults with autism: A guide to diagnosis, inner-acceptance and prosperity.
CreateSpace Independent Publishing Platform.
Ezerins, M. E.,
Simon, L. S., Vogus, T. J., Gabriel, A. S., Calderwood, C., & Rosen, C. C.
(2024). Autism and employment: A review of the “new frontier” of diversity
research. Journal of Management, 50(3), 1102–1144. https://doi.org/10.1177/01492063231193362 (Original work
published 2023)
Focus on Autism and
Other Developmental Disabilities: Sage Journals Vol 40 No. 1. (n.d.). Retrieved
from https://journals.sagepub.com/home/foa
Hendricks, D.
(2010). Employment and adults with autism spectrum disorders: Challenges and
strategies for success. Journal of Vocational Rehabilitation, 32(2),
125-134. https://doi.org/10.3233/JVR-2010-0502
Hens, K. (2021). Towards
an ethics of autism: A philosophical exploration. Open Book Publishers.
https://doi.org/10.11647/OBP.0261
Kimmel, M. S., Earp,
J., Jhally, S., & Young, J. T. (2015). Guyland: The perilous world where
boys become men. Media Education Foundation.
Lord, C., Elsabbagh,
M., Baird, G., & Veenstra-Vanderweele, J. (2018). Autism spectrum disorder.
The Lancet, 392(10146), 508–520.
https://doi.org/10.1016/S0140-6736(18)31129-2
Lowinger, S., &
Pearlman-Avnion, S. (Eds.). (2019). Autism in adulthood. Springer.
Shattuck, P. T., et
al. (2018). Post–High School Service Use Among Young Adults With an Autism
Spectrum Disorder. Archives of Pediatrics & Adolescent Medicine,
165(2), 141–146. https://doi.org/10.1001/archpediatrics.2010.292
Swedish National
Board of Health and Welfare. (2022). Autism support systems in Sweden: A
policy overview. Retrieved from https://www.socialstyrelsen.se/en/autism-support
The Daniel Jordan
Fiddle Foundation. (n.d.). About us. The Daniel Jordan Fiddle
Foundation. Retrieved May 1, 2025, from https://www.danieljordanfiddlefoundation.org
Weiss, J. A., &
Lunsky, Y. (2010). Service utilization patterns in parents of youth and
adults with developmental disabilities and mental health problems. Journal
of Intellectual and Developmental Disability, 35(1), 1–10.
https://doi.org/10.3109/13668250903496355
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